Amanda Decker.... Her Story

Amanda Lynn Decker is 14 years old. When she was 2 1/2 months old she got very sick with RSV and ended up in the hospital. While there her heart stopped and they had to bring her back. She was then diagnosed with a heart disease called Restricted Cardiomyopathy, from then on she was in Syracuse Hospital off and on, until 11 months old when they finally shipped us to NYC to be evaluated for a heart transplant. She recieved her transplant on November 3, 1998. She still has to go for biopsys, echos, ekgs, and X-rays every 3 to 4 months because of her recent slight rejections. She takes rejection medicines for the rest of her life,  she takes 6 in the morning and 6 at night. She has her biopsys at Childrens Hospital at Columbia Presbyterian in New York City. When they do a biopsy they go in her groin or neck to her heart to snip a piece of it to check for bad cells that may be attacking her heart. In the last 2 years she has been having slight rejection so has needed her biopsy every 3 months and blood work every couple weeks to check her medicine levels. She is in 8th grade and she works very hard at school. She is a high honor student and loves to dance and sing
 

 

 

   

Do you have extra cans and bottles? You can donate them to the PBJ. Drop them off at the Redemption Center at 459 Chestnut Street in Oneonta. 607-433-9750. Tell them that they are for the PBJ Kids!

  

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